Please can anyone help. I have severe OSA and have been using a full face mask for 12 years as a mouth breather with deviated septum.
I have been suffering with tmj pain and have been told by my cardiorespiratory clinic nurses that nothing can be done.
I’m now in so much pain i’m going nuts. My osteopath is doing what she can each month to help loosen off my muscles. My ears are blocked, my tinnitus is massively worse, banging headaches, misophonia-type symptoms, gum disease and no idea what to do.
I’m really concordant with my cpap as I understand the severity of untreated sleep apnoea but I can’t stand the pain any more.
Please can anyone clinical give me advice? Thank you
1 Like
This isn’t clinical advice, but Botox in my jaw healed my TMJ. I got it a couple different places that told me they HAD to do both sides, but when I found the right doctor, he only did one side and it magically fixed everything. I’ve never had to go back.
Thank you so much that’s ever so helpful. I will try to get an appointment with my cons cardiorespiratory and see if I can get that!
TMJ can apparently have many causes. I have it and it comes back every 6 to 8 weeks and lasts for two weeks and then goes away for another 6 to 8 weeks. This has been going of for over 5 years. But 6 months ago i got so bad that it was unbearable. Like getting hit in the face with a shovel full of red hot coals. It was beyond bearing and I, for the first time, understood the name “The Suicide Pain”. I was desperate for an answer. Doctors told me surgery was the only way and they could NOT guarantee that it would work. I told them I would not undergo brain surgery (and it is brain surgery do matter what they say) without a guarantee that it would work.
I started studying and found that in France they have treated it successfully with DMSO. My research on DMSO showed it to be relatively free of side effects, so why not try it?. So I decided to try it (10% solution with water and applied twice a day to the trigger points). With mine it is the teeth on the upper jaw and upper lips.
Since then I have not had a serious episode. Some pain, but bearable. I can at least eat without pain.
Hi Jim
Just to say thank you for sharing ideas about how to manage TMJ. I am truly grateful for any help or advice. Trying to get a balance with my CPAP which I can’t manage without and the pain of TMJ is really hard.
Its been a while since I posted about the DMSO and the TGN so I feel an update might be warranted.
My last attack of TGN was in early December 2024, when I had the worst attack ever. Its going on a year now and until yesterday I had only mild attacks…not long and not really painful. I immediately treated them with the DMSO for a couple of days and when they subsided I stopped the treatment. Yesterday I gad a painful attack on my right eye and I started DMSO and today I am still having mild pain. But its just not bad and I will take this any day over what I was experiencing every 6 to 8 weeks over the previous 5 years! At least, for me, the DMSO is working.
1 Like
I’m just another patient but could you be having migraines? I have tmj pain and migraines but they sometimes work in tandem. I’ve been having a lot of sinus issues as well which have affected my ears. I went to see my PCP to get checked out, and I need to follow up with my ENT. But worth going to see your pcp at the very least if you haven’t already!
1 Like